Diagnosis
Screening and early diagnosis ensures earlier treatment and better health for life4
Financial
Impact
Delayed diagnosis has a significant financial impact on families4
Action
The conditions tested for in newborn screening are actionable5
Variations in newborn screening across Europe1
Number of diseases screened for at birth
- 30+: Russia, Portugal, Austria, Italy
- 20+: Slovakia, Ukraine, Poland, Hungary, Czech Republic, Estonia, Germany, Finland, Denmark, Norway, Netherlands, Sweden
- 15+: Slovenia
- 10+: Croatia, Lithuania, Belgium, Switzerland, France
- <10: Ireland, Latvia, Bulgaria, Romania, Cyprus, Malta, Greece, Luxembourg, UK, Spain
Take Action Now
Ireland needs a comprehensive newborn screening program that is adequately resourced and ensures that babies born in Ireland are screened for the European average of 18 conditions at a minimum. It is not acceptable for the Irish healthcare system to fail our children in the first days of their lives.
It’s time to Get Rare Aware and demand action. Support the campaign by contacting your Oireachtas representatives and ask them to demand that Ireland is above average when it comes to newborn screening.
Meetings..
