Staff
Ireland has only 1/2 the staff it needs for genetic services1
Waiting
People are waiting over 2 years for the right diagnosis2
Wrong Treatment
The delay in diagnosis means that people are being treated for the wrong diseases3
Early Access
Early access to genetic testing reduces waiting lists4
Disease Origin
72% of rare diseases are genetic in origin4
A Long road to diagnosis
Without genetic testing people living with a rare disease will meet with 3 or more different consultants on the path to the right diagnosis4
Take Action Now
Ireland has only 1/2 the staff it needs for genetic services. People are waiting over 2 years for the right diagnosis. The delay in diagnosis means that people are being treated for the wrong diseases. As outlined in Sláintecare, all 6 Regional Health Areas will refer people suspected of living with a rare disease to the Department of Clinical Genetics at our Lady’s Hospital, Crumlin for genetic services.
Please take this opportunity to contact the Oireachtas members that represent people in your area and ask them to Get Rare Aware.
Take Action Now…
Why is early access to genetic services so important?
Clare O’Neill
Eorumque factis
Tum dicere exorsus est et fortibus viris commemorandis eorumque factis non existimant oportere.
Liam Murphy
Eorumque factis
Tum dicere exorsus est et fortibus viris commemorandis eorumque factis non existimant oportere.
