Staff

Ireland has only 1/2 the staff it needs for genetic services1

Waiting

People are waiting over 2 years for the right diagnosis2

Wrong Treatment

The delay in diagnosis means that people are being treated for the wrong diseases3

Image of researcher with microscope and DNA strand

Early Access

Early access to genetic testing reduces waiting lists4

Disease Origin

72% of rare diseases are genetic in origin4

A Long road to diagnosis

Without genetic testing people living with a rare disease will meet with 3 or more different consultants on the path to the right diagnosis4

Take Action Now

Ireland has only 1/2 the staff it needs for genetic services. People are waiting over 2 years for the right diagnosis. The delay in diagnosis means that people are being treated for the wrong diseases. As outlined in Sláintecare, all 6 Regional Health Areas will refer people suspected of living with a rare disease to the Department of Clinical Genetics at our Lady’s Hospital, Crumlin for genetic services.

Please take this opportunity to contact the Oireachtas members that represent people in your area and ask them to Get Rare Aware. 

Take Action Now…

Why is early access to genetic services so important?

Clare O’Neill

Eorumque factis
Tum dicere exorsus est et fortibus viris commemorandis eorumque factis non existimant oportere.

Liam Murphy

Eorumque factis
Tum dicere exorsus est et fortibus viris commemorandis eorumque factis non existimant oportere.

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