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Take Action Now

Ireland has only 1/2 the staff it needs for genetic services. People are waiting over 2 years for the right diagnosis. The delay in diagnosis means that people are being treated for the wrong diseases. As outlined in Sláintecare, all 6 Regional Health Areas will refer people suspected of living with a rare disease to the Department of Clinical Genetics at our Lady’s Hospital, Crumlin for genetic services.

Please take this opportunity to contact the Oireachtas members that represent people in your area and ask them to Get Rare Aware. 

Take Action Now…

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