Staff

Ireland has only 1/2 the staff it needs for genetic services1

Waiting

People are waiting over 2 years for the right diagnosis2

Wrong Treatment

The delay in diagnosis means that people are being treated for the wrong diseases3

Were you aware?

300,000

people in Ireland are living with a rare disease, impacting a quarter of all families7

dna

Three quarters of rare diseases
are genetic in origin6

data-classification

Over 6,000 diseases
are classified as rare4

child

Children account for
50% of all people living with a rare disease8

aromatic-candle

11.8% of children living with a rare disease will die
before the age of 189

genetic

Nearly 60% of all
children who die have
a rare disease10

patient-2

Children living with a rare disease spend 25 times
more time in hospital9

stretcher

49% of people living with a rare disease receive inappropriate care, treatment or surgery due to misdiagnosis3

wait

62% of people living with a rare disease have delayed access to care, treatment or surgery due to misdiagnosis3

wrong

66% of people living with a rare disease report symptoms that are wrongly attributed to another disease3

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