Staff

Ireland has only 1/2 the staff it needs for genetic services¹

Waiting

People are waiting over 2 years for the right diagnosis²

Wrong Treatment

The delay in diagnosis means that people are being treated for the wrong diseases³

Were you aware?

300,000

people in Ireland are living with a rare disease, impacting a quarter of all families⁷

Three quarters of rare diseases
are genetic in origin⁶

Over 6,000 diseases
are classified as rare⁴

Children account for
50% of all people living with a rare disease⁸

11.8% of children living with a rare disease will die
before the age of 18⁹

Nearly 60% of all
children who die have
a rare disease¹⁰

Children living with a rare disease spend 25 times
more time in hospital⁹

49% of people living with a rare disease receive inappropriate care, treatment or surgery due to misdiagnosis³

62% of people living with a rare disease have delayed access to care, treatment or surgery due to misdiagnosis³

66% of people living with a rare disease report symptoms that are wrongly attributed to another disease³

Campaign Partners

This initiative is brought to you by Rare Diseases Ireland
and Roche Products (Ireland) Ltd

Rare Diseases Ireland

Carmichael House, North Brunswick Street,
Dublin 7, D07 RHA8, Ireland

Roche Products (Ireland) Ltd

3004 Lake Drive
Citywest Business Campus, Naas Road
www.roche.ie

M-IE-00001470 Date of Preparation: March 2023 | Privacy Notice | Cookie Notice| Terms & Conditions